Never forget that humility is the mark of greatness
Welcome to The Short Read, our weekly peek behind the curtain at the people who make this amazing community tick. Make sure to check back every Tuesday for the latest installment.

Festival of Genomics

Karen Keeley

Karen Keeley is currently consulting on Special Projects for Agility Clinical, a unique consulting and contract research organisation (CRO) dedicated to working with virtual, small biopharma and device companies, specialising in orphan drugs and RARE disease.

As well as this, she is also the Medical Data Specialist and Patient and Group Liaison for Rare Science, San Diego. As a patient coordinator and advocate she enjoys helping patients understand the collection and research process that could make a significant difference in their or their child’s life. Prior to joining Rare Science Keeley had worked in mid to senior level positions in the University Seeing, and started up her own Therapeutic 501c non-profit S. Corporation and Horse Ranch serving the Autism and Veteran P.T.S.D. communities.

Karen will be speaking at the third Festival of Genomics London in January 2018. On day one she will be presenting on ‘Autism in the USA: An 18 year journey – A caregiver’s perspective from undiagnosed to diagnosed & beyond with genetics’.

What are you working on right now? 

Personally, I am working on finally getting my 19-year-old Autistic son (Carson’s) Genome run. Professionally I am focused on Biotech consulting; working on special projects such as Rare/Orphan Disease Clinical Trial Recruitment, social media platform management, content and marketing within the Biotech space, medical records (EHR) and what the future of that may look like especially for Rare and Orphan disease patients.

What’s the biggest challenge you face in your work at the moment?

Genomic testing for my Autistic/Add son.

Name one big development that you would like to see in your field in the next 18 months.

Genomic testing for all children and Electronic Health Records with transferability.

What are you most proud of in your career?

Helping patients find their path and never giving up on the Advocacy front.

Which scientists, living, dead, or fictional, would you invite to dinner, and why?

Dr. Stephen Scherer to discuss Autism Genome databases and how they could be utilized to perhaps help my son and others with Autism worldwide.

What advice do you wish someone had given to you at the start of your career?

Always follow your passion. Take every task given to you and put 100% of your effort into it, your perseverance will shine through. Happiness and success will follow.

Registration for the 2018 Festival is free; secure your Festival Pass here to hear more of Karen’s journey.

 

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