GAUK’s Nick Meade contemplates what the consequences of leaving the EU could be for rare disease patients in the UK, in an article for Scientists for EU
Continuing the Genetics Clinic of the Future with ‘The Doctor’s Office’
Genetic Alliance UK is asking for patient input on a survey on data usage.
Complaint to US government alleges that diagnostic company is withholding genetic information from patients
The UK Government has put undiagnosed conditions on the political map with a new APPG. Genetic Alliance UK’s Emily Muir reports on their first meeting.